A rare disease is one which affects fewer than one in 2,000 patients. Many rare diseases are fatal. Most rare diseases are genetic, directly caused by changes in genes or chromosomes that affect the body's ability to produce enzymes or biochemicals needed for the body to function normally.
Rare diseases can affect people of all ages but they are often diagnosed at birth or during early childhood. Without treatment, most conditions can be life-threatening. About one-third of patients with rare diseases globally do not live beyond five years old.
There are no treatments available for most rare diseases. But for a few, effective medicines are available which can replace the missing enzymes or biochemicals. In such cases, with early treatment, patients' lifespans and quality of life will be greatly improved, allowing them to live relatively normal lives.
The medicines usually have to be taken for the patients' entire lives and can be very expensive. This places a heavy financial burden on the patients and their families.
About Rare Diseases
More than 7,000 rare diseases globally
of rare diseases have genetic origins and are present for the patient's entire life
Symptoms begin in infancy or childhood in 50% of rare diseases
Effective treatments are only available for about 5% of rare diseases
Rare Diseases in Singapore
2,000-3,000 people are estimated to have a rare disease in Singapore
Approximately 700 of them are children
Why financial assistance is needed
Some medicines can cost each patient more than S$200,000 a year
Patients will need these medicines for life which is a significant financial burden
Funding support will ease financial burden and stress on patients and their families
Your gift to the RDF is life-giving. You will be providing financial assistance for the expensive medicines that patients need to allow them the opportunity to live a relatively normal life.
All donations are welcome, and no donation is too small for the RDF. Your kind contribution will be a great source of help and support to the patients and their families as they battle these diseases.
For every dollar of public donation, the Government will match $3, boosting the impact of the fund.
Tax deduction for all eligible donations made from 1 January 2016 to 31 December 2023. For more information, please refer to www.iras.gov.sg
We are honoured to recognise the following donors and partners of the Rare Disease Fund for their support. On behalf of the beneficiaries, thank you for giving them the Hope for a Lifetime.
|$1,000,000 to $4,999,999||
|$500,000 to $999,999||
Chua Kee Lock
|$100,000 to $499,999||
|$10,000 to $99,999||
Aryanish Kapadia & Jamshed Dadabhoy
Charles Goh Tiow Guan
Chua Joo Hock
Loh Guo Pei & Fu Jia
Mr and Mrs Victor Sassoon
Rare Disorders Society (Singapore) - Carry Hope Ambassadors
Sanofi -Aventis Singapore Pte Ltd
Timothy C M Chia
|$1,000 to $9,999||
Christopher Lim (member of MDRT)
Hong Bee Yin
Click the links below for:
We are grateful to everyone and we apologise if we are unable to include every individual's / company's name in time.