A rare disease is one which affects fewer than one in 2,000 patients. Many rare diseases are fatal. Most rare diseases are genetic, directly caused by changes in genes or chromosomes that affect the body's ability to produce enzymes or biochemicals needed for the body to function normally.
Rare diseases can affect people of all ages but they are often diagnosed at birth or during early childhood. Without treatment, most conditions can be life-threatening. About one-third of patients with rare diseases globally do not live beyond five years old.
There are no treatments available for most rare diseases. But for a few, effective medicines are available which can replace the missing enzymes or biochemicals. In such cases, with early treatment, patients' lifespans and quality of life will be greatly improved, allowing them to live relatively normal lives.
The medicines usually have to be taken for the patients' entire lives and can be very expensive. This places a heavy financial burden on the patients and their families.
About Rare Diseases
More than 7,000 rare diseases globally
of rare diseases have genetic origins and are present for the patient's entire life
Symptoms begin in infancy or childhood in 50% of rare diseases
Effective treatments are only available for about 5% of rare diseases
30% of children will die before their fifth birthday unless early treatment is given
Rare Diseases in Singapore
2,000-3,000 people are estimated to have a rare disease in Singapore
Approximately 700 of them are children
Why financial assistance is needed
Some medicines can cost each patient more than S$200,000 a year
Patients will need these medicines for life which is a significant financial burden
Funding support will ease financial burden and stress on patients and their families
Your gift to the RDF is life-giving. You will be providing financial assistance for the expensive medicines that patients need to allow them the opportunity to live a relatively normal life.
All donations are welcome, and no donation is too small for the RDF. Your kind contribution will be a great source of help and support to the patients and their families as they battle these diseases.
For every dollar of public donation, the Government will match $3, boosting the impact of the fund.
Tax deduction for all eligible donations made from 1 January 2016 to 31 December 2021. For more information, please refer to www.iras.gov.sg
We are honoured to recognise the following donors and partners of the Rare Disease Fund for their support. On behalf of the beneficiaries, thank you for giving them the Hope for a Lifetime.
|$5,000,000 and above||
Far East Organization
|$1,000,000 to $4,999,999||
Ho Bee Foundation
National Healthcare Group Fund
National University Health System Pte Ltd
Singapore Health Services Pte Ltd
|$100,000 to $999,999||
Balaji Sadasivan Endowment
Managed by Temasek Foundation
The Grace, Shua, and Jacob Ballas II Charitable Trust
|$10,000 to $99,999||
AIA Singapore Private Limited
AXA Insurance Pte Ltd
Mount Alvernia Hospital
Raffles Medical Group
|$1,000 to $9,999||
Chan Beng Seng
Eu Oy Chu
Lim Siew Wah Grace
Mak Seck Wai, Kenneth
Viking Open Scout Group
|With special thanks to||
*The list is updated as of 23 July 2019.
We are grateful to everyone and we apologise if we are unable to include every individual's / company's name in time.